Group hopes to create autism registry

Group hopes to create autism registry

EAST PROVIDENCE - The Rhode Island Consortium for Autism Research and Treatment, a group of the state's leading experts on autism research, education, health and services, has received a $1.2 million grant to create a first-of-its-kind confidential registry of every individual diagnosed with autism in Rhode Island. Awarded by the Simons Foundation, the grant will help RI-CART create a data and resource continuum for thousands of children and adults in the state with autism spectrum disorders. The grant will enable "face-time" between Rhode Island families affected by autism and clinical experts and researchers, according to a press release.

Participation in the project will facilitate communication between clinical experts and families as well as provide families with important information for navigating state autism services.

During the next three years, RI-CART hopes to enroll more than 1,000 children and adults with autism. It's the first step in the long term goal of enrolling all individuals with autism in Rhode Island in the research network.

For more information about RI-CART, call 401-432-1200, email RICART@Lifespan.org, or visit www.AutismRI.org .